Tuesday I meet with my radiation oncologist to plan for gamma knife on the margins of the brain tumor that was removed at the end of April. While I am certainly not looking forward to another procedure on my brain, the tumor needs to be eradicated.
In June I will be changing to a different treatment, my second. I lasted over 4 years in the first line of treatment. I had hoped for more years, but we need to stop more brain tumors from growing. Part of the new treatment will be infusion and part will be oral. My co pay for the oral drugs is $300 every 21 days. It will be worth every penny if it works. The side effects of the new treatment will be much worse than what I’m currently taking. I’m trying to wrap my head around all of it.
My tank is completely empty.
https://youtu.be/d9_PxplXOY8?si=e13eKBox3W7wi1wo
“I know I can’t be the only one, who’s holding on for dear life
But I know God knows, when it’s all said and done
I’m not OK, but it’s all gonna be alright
It’s not OK, but we’re all gonna be alright”
I am not in control. 