Dave & I left home at 4:30 am. I had neck down scans today followed by a visit with my oncologist and finally treatment #88. Scans show the cancer is still controlled neck down. I am experiencing medical burnout and asked to push the next neck down scans to 6 months instead of 3. To quote Dave, “She is tired of being probed.”
In 5 years:
Treatments – 88
Gamma Knife rounds – 3
Radiation to adrenal gland – 5 rounds
Radiation to left shoulder – 1 round
Breast MRI – 1
Spine MRI – 3
Heart MRI – 9
Echocardiogram – 7
Brain MRI – 18
Whole Body Bone Scans – 14
Chest/Ab/Pelvic CT – 19
Bone Biopsies – 2
Removal of cyst from my spine
Brain surgery to remove tumor #12
Radiation to brain – 5 rounds
I’m taking a break from capecitabine, one of the new chemo pills that makes me so terribly sick. When I start again, I will try to lower the dose yet again. I need it, but I also need to have a decent quality of life. It seems to be a fine line to balance when dealing with metastatic breast cancer.
I’ve got some busy weeks ahead and I need a little more energy to get through them.
Saturday, October 12 is the Chicagoland Be a Hero Fun Run to raise money for Metavivor.
https://raceroster.com/events/2024/91641/chicagoland-be-a-hero-fun-run
Sunday, October 13 is National Metastatic Breast Cancer Day. I’m advocating with LightUpMBC to raise money for Metavivor. I will share my story on the live, virtual broadcast at 7 pm. I hope you tune in to watch.
Here is my fundraising link:
https://donate.metavivor.org/fundraiser/5554408
Beginning October 14, I’m clearing my calendar for a break. Indie, Madi and I will be on my oasis doing a whole lot of nothing.
I am not in control. 